What MPS Bio does and does not do
MPS Bio provides information, signposting and referral guidance. It does not fundraise or campaign, and it does not replace healthcare services, emergency care, specialist clinicians or established MPS organisations.
National MPS societies
- Country-level organisations for families and carers
- Practical guidance on benefits, schooling and daily life
- Regional coordinators and local contacts
Specialist metabolic centres
- Where assessment and long-term care are coordinated
- Referral is normally arranged through your existing clinical team
- Centres differ in the services they host on site
Family and community networks
- Peer contact with other families
- Practical help and local groups
- Moderated spaces, with their own rules on medical discussion
International federations
- Cross-border information and research links
- Directories of national member organisations
- Conference and family-meeting listings
Named organisations are not yet listed
This page describes the categories of support without naming individual organisations. Named listings require verification of each organisation, a recorded review date and a link-checking process before publication. That work must be completed before the website opens to the public.